There is currently no cure for dementia with Lewy bodies. But there are treatments that can help manage the symptoms.
Your treatment team will create a care plan. They will assess your current and future health and social care needs.
This is a way of making sure you get the right treatment for your needs.
It involves looking at areas where you may need some help, such as:
- what support you or your carer need for you to remain as independent as possible, including whether you might need care at home or in a nursing home
- whether there are any changes that need to be made to your home to make it easier to live in
- whether you need any financial assistance
Medicine cannot stop dementia with Lewy bodies getting worse. But for some people it can help reduce some of the symptoms.
Acetylcholinesterase (AChE) inhibitors may help improve hallucinations, confusion and sleepiness in some people.
These work by increasing levels of a chemical called acetylcholine in the brain. This improves the ability of the brain cells to send signals to each other.
Common side effects include:
- feeling and being sick
- muscle cramps
This medicine is not an AChE inhibitor. It works by blocking the effects of a large amount of a chemical in the brain called glutamate.
Memantine is used for moderate or severe dementia with Lewy bodies. It's suitable for people who cannot take AChE inhibitors.
Side effects can include headaches, dizziness and constipation. These are usually temporary.
Read the information leaflet that comes with your medicine and talk to your GP about possible side effects.
There are other medicines that may help control some symptoms of dementia with Lewy bodies.
- levodopa - this can help with movement problems, but it can also worsen other symptoms and needs to be carefully monitored by a doctor
- antidepressants - these may be given if you're depressed
- clonazepam - this can help if you experience a particular type of rapid eye movement (REM) sleep behaviour disorder
- antipsychotics (such as haloperidol) - these may help with behaviour that's putting you or others at risk of harm, but they can cause serious side effects and should be avoided whenever possible
Support and other therapies
There are some therapies and practical measures that can help make life easier for someone with dementia.
This can help to identify problem areas in everyday life, such as getting dressed.
Speech and language therapy
This can help to improve communication or swallowing problems.
Can help to improve movement.
Activities and exercises to improve memory and problem-solving skills.
For example, massage, and music or dance therapy.
For example, social interaction, leisure activities and dementia cafes.
Find out more about dementia cafes - dementiacafe.ie
Making sure the home is well lit, removing trip hazards and adding grab bars and handrails.
Assistive technologies can help to promote independence, communication and safety. A Memory and Technology Resource Room can help you identify what assistive technology might work for you.
National Dementia Advisor Service
This service provides more information and advice about living with dementia.
End of life and legal issues
If you have been diagnosed with dementia, you might want to make arrangements for your care.
This may include making sure that your wishes are upheld if you're not able to make decisions for yourself.
You may want to consider:
- creating an advance decision, which makes your treatment preferences known in case you're unable to do this in the future
- having a plan for where you want to receive treatment as your condition becomes more advanced
- giving a relative enduring power of attorney, enabling them to make decisions about you if you're unable to
Content supplied by the NHS and adapted for Ireland by the HSE